was kind of a mystery because it came back and through research I figured out
why I figured out why it had disappeared
The intention of this video is about certain issues from my
personal experience. This video is for entertainment purposes only it's not in any
way intended as medical advice. What you do with any information herein is 100% your responsibility.
It all began at the end of July when I got the sudden urge to finish some
projects.
Literally the next day began back-to-back suffering with allergic
reactions.
You're on round-the-clock antihistamines just so that you don't go into
anaphylactic shock and I had no idea where the reaction was coming from. So I
thought it was from the house because I was so careful with everything that I
was eating I thought that the food allergies were under control but I found
myself ripping my hands apart almost every night scratching. The cuts and the
oozing on the hands became so bad I couldn't even move my fingers the joints
had hardened to something called the lichenification. It's when the oozing and
the blood dry and the skin thickens so the skin can finally heal. The air was so painful
so I wear nitrile gloves and take antihistamines around the clock. There
were moments where I literally felt out of my body like I wasn't even a part of
me. As some of you might have seen from the really angry video that I
posted but keep in mind anger is a major side effect whatever was going on in my
body whatever was going on in my system people can say all they want that that's
not an excuse but ask that to somebody brain disease
ask that to someone with Alzheimer's or Parkinson's.
When something affects the brain that greatly a person does not have control
over the way they're thinking or the things they are saying or the
reactions they might have to situations that might normally be manageable. That might
normally be something that they would be patient with. Allergic reactions affect
the brain and body systems in ways many doctors do not yet fully understand.
To say Amy's life has been restricted would be an understatement. She's
severely brain damaged unable to speak or control her limbs this is the
shocking reality of what having a severe food allergy can do. Total devastation
and from our point of view Amy was such a vivacious, outgoing person.
Her father remembers how she used to be a successful TV producer with a
high-flying career but four years ago while on holiday in Budapest
she ate a restaurant meal that she was told didn't contain nuts. It did. She went
into anaphylactic shock and had a cardiac arrest. In Budapest she goes away
for that weekend with her girlfriends and she goes to this restaurant, "will you
have stuff that you can serve me?" okay "Yeah, yeah, yeah, not a problem not a
problem." And she showed an allergy card in Hungarian. Yes. Which I think is very important
Everywhere Amy went she carried her Epi-Pen. Whatever country... And her Epi-Pen she had with her...everything needed for an allergic reaction.
And the restaurant informed the chef who asked what she would like to
eat and she picked a chicken dish with rice and again they said this dish has
no nuts it's not cooked in anything with nut oil it would be fine and she had
purchased one mouthful and immediately felt her throat tightening and went into
major anaphylactic shock. And we can see her reacting to that. Yeah she does
remember. We must say to people that Amy can understand everything we're saying here.
Yes, she can. But obviously she finds it very very difficult. That's right Ruth, yes. So we
just you know want to look include her in this but obviously she can't answer
the questions. No, that's why I'm doing it for you, Amy. "Yeah." The thing is the the chicken
must have been basted in was it a pesto sauce? Well it was either pesto or maybe
cooked in peanut oil. They told us that it hadn't been but after she
administered two epi pens and I think that's really important..
TWO EpiPens administered and they didn't contain it because it was such a severe
reaction and she went into anaphylactic shock. She died Roger. For six minutes.
The main damage before she was resuscitated we didn't know what to
expect they didn't actually think that she would survive the week.
They gave her a 30% chance of actually getting through that week. This, this
issue of people being allowed nuts and peanuts on some people on planes...could literally could
somebody open a bag of peanuts near somebody who's got an allergy as severe
as Amy's and literally just breathing in...but you see also remember the airs are circulated in a plane. Yes. Yes.
So people say well you know they're not eating them they aren't eating
them near somebody. That's right .... in the studio right now somebody across the studio could
open a packet of nuts and just the particles that go into the air if Amy
was to inhale that that could set off this type of reaction. I can vouch for
that when I was really little when I was about five six years old I used to go
back and forth between Virginia and New York because my father still lived in
Virginia and I would see my grandparents and go with my mom to New York since
peanuts were allowed on the planes at the time I would break out in severe
hives because the whole plane smelled like peanuts so at the time I mean we
didn't know that it was gonna be a severe reaction you know from inhaling
but from inhaling for me I would get severe hives so within about I would say
like 15 minutes of people eating the peanuts and the air circulation I would
take a Benadryl and be knocked out for the entire flight but I remember that I
used to actually have to take the benadryl during the flight because of
the peanuts in the air and the the hives that it would cause and then of course
once we got to New York I was battling hives for at least another day or two
sometimes longer Amy I know you're listening to all this so we've been
asking people you know should you be allowed nuts on planes that would be
very very dangerous for somebody like you or somebody with your reaction what
do you think? Should nuts be allowed on planes?
That's no. That's no. Definitely not. Looking at me like the way I am right now
most people wouldn't see anything health-wise wrong. Who I am when I'm sick
is not who I am when I'm healthy on an emotional level a psychological level
and a physical level. All three of those.. your thoughts change, your face looks
different.. you know there's a lot of things that are different. So I knew that
my food allergy is pretty intense and it's not something that I really
talked about because you know I was a big believer in what we focused our
energy on we attract right I realized that I was completely neglecting the
very thing that was going to allow me to do everything that I've ever wanted. You
know you can't just keep pushing forward and keep going forward doing the things
that you got to do without looking at your health. The concentration levels
when you're editing is like non-existent when you're going through reaction I get
so tired you literally have to stop or just try to get better. And it's
something that I really really learned during this entire experience is that if
you don't have your health you have nothing it's not about getting that
project done it's not about being there because you have to be, no. Your health
is your life. And so I had some experiences during this time that I
would not wish on anyone if I can help ease one person's suffering out there
for not having to go through what I went through, then I've done what I had
to do. I had spent such a long time isolating myself over the past two years
and not intentionally. It was like I just wasn't living the way I used to... because
there was a slow progression of symptoms that I didn't fully understand until
after I recognized the patterns. I wasn't conversing with people the way
I used to. I couldn't understand people the way I
used to. You know here I was with these symptoms of convergence insufficiency
and auditory processing disorder and here I thought, "Okay, maybe it's
Asperger's.." because I would get these notifications on my phone for different
videos that would show up out of nowhere on Asperger's and I was like hmm, that's
interesting because a lot of the symptoms seemed similar to one or two
family members. So I was like, hmm, so if I'm if I'm pointing the finger at someone
else the first thing I do is look at me it's it's just the way I am ever since
all of the spiritual work that I've done I don't point without looking at myself
first so I looked at myself and I was like wow like I seem to have a lot of
these symptoms do I have Asperger's I don't know I had been to therapists
before I had been to psychiatrists several years ago it started with severe
severe depression and there were maybe like two or three times a year where I
would get these severe panic attacks and I couldn't understand why they weren't
really triggered by anything and they just seemed to pop up out of nowhere
so for awhile I actually thought that those panic attacks were due to spirits
or spirit activity and I realized that panic attacks and anxiety can absolutely
be tied to spirit activity however the way that you handle the anxiety or panic
that comes up has everything to do with how well your brain is working. Is your
brain having brain fog from allergies? Is your brain having weird neurological
symptoms from severe allergies? okay these are things that I hadn't really
considered in the past you know I knew that allergies affected the brain I knew
that they made me tired I knew that they did cause depression at certain points
right but I knew after the work that I had done with the spiritual work I knew
that I was definitely not depressed I didn't want to die at all I loved my
life even though from the outside looking in you know you see some of the
things that I tell you guys stories about you're
like oh my god like how could how could she handle that but you realize also
that I've lived with it for this long you know so it's not like it's something
that I was able to manage and it wasn't until the last three months that I
realized how connected my brain is to everything that I eat, drink, take, either
through medication or supplements...which thank God I'm not on any medications now
except for Benadryl every once in awhile. So to make a long story short, what's
interesting is that it took ten ER visits and nine doctors to find out that
I was iron deficient. Severely iron deficient. The symptoms that many medical
professionals look for in iron deficiency anemia and iron deficiency in
general, are not the symptoms that I exhibited. What I exhibited the ten times
I went to the ER and the nine times that I went to specialists were mostly mental
symptoms. I was presenting a lot of stomach symptoms. Incoherent speech.
Memory problems. Problems explaining what was going on so a lot of times I would
bring a list of what I was experiencing during that time. I would I would write
it down while I was at home, freaking out, and I would bring it to the ER with me
or to the doctor and I would give them the list just so I could remember the
progression of symptoms that was happening because there were just too
many. I was talking about symptoms that involved the brain. Symptoms that were
going on behind my eyes. Severe head pressure and paralysis of my jaw.
Paralysis of the neck. Took me going to an oncologist, a cancer doctor, to find out
that my ferritin levels were at a six if I had gone any longer probably even few
days longer it would have warranted blood transfusions. If I went to a
Rheumatologist before I found that out, I might have been diagnosed with several
different autoimmune diseases and not gone to the root of the problem.
This experience absolutely changed me. I am not the person
that you knew three months ago. I now see life in a way that every day
counts. Every moment counts. Every thought, every action. And I'm not talking about
when someone is sick, alright? Those that deal with autoimmune conditions or diseases that you manage, and your thoughts are affected by..that's not what I'm talking about.
What I'm talking about is the conscious decision and realization after this experience that I am so freaking lucky.
I am so grateful to be alive right now. To be able to tell you this story.
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